Sharing my disease and all it's frustrations, is not always an easy task. I remember joining several support groups online and having radio silence for months before posting. People like me. People who laugh, cry and scream about the one thing we all have in common: Behcet's. Sure, I found some I had more in … Continue reading Dear Behcet’s: 05.08.2017
Dear Behshits, This is seriously one of the lowest points in my life. I have $4 in my bank, plus stray change in my car. I can't even buy food or gas. I'm living back home with my parents...something that has not happened for at least five years. And they're supporting me...which is a tremendous … Continue reading Dear Behcet’s 01.10.2017
At the time this letter was written, I was struggling quite a bit with life balance and what my "next move" would be. I moved out of my home state with The Lawyer in late 2014, because his best option was practicing law in his home state. He was having a terrible time finding a … Continue reading Dear Behcet’s: 9.20.2016
One of my favorite ways to get the frustrations out of dealing with Behcet's is via a Facebook group called "Dear Behcet's". Unlike other support groups, there is no talk of symptoms, medications or pictures of ulcers. The only rule is that if you have something negative to say about Behcet's Disease, you put it … Continue reading Dear Behcet’s 8.14.2016
I can not tell you how essential my finding support groups for Behcet's Disease has been. I was semi-diagnosed by a nurse practitioner at a sliding scale clinic for uninsured patients circa 2009. I'd done the classic Google and WebMD searches and BD had come up as a result...but who would really think that was … Continue reading Dear Behcet’s, I Loathe You So.