Dear Behcet’s: 05.08.2017

Sharing my disease and all it's frustrations, is not always an easy task. I remember joining several support groups online and having radio silence for months before posting. People like me. People who laugh, cry and scream about the one thing we all have in common: Behcet's. Sure, I found some I had more in … Continue reading Dear Behcet’s: 05.08.2017

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Dear Behcet’s 8.14.2016

One of my favorite ways to get the frustrations out of dealing with Behcet's is via a Facebook group called "Dear Behcet's". Unlike other support groups, there is no talk of symptoms, medications or pictures of ulcers. The only rule is that if you have something negative to say about Behcet's Disease, you put it … Continue reading Dear Behcet’s 8.14.2016

Dear Behcet’s, I Loathe You So.

I can not tell you how essential my finding support groups for Behcet's Disease has been. I was semi-diagnosed by a nurse practitioner at a sliding scale clinic for uninsured patients circa 2009. I'd done the classic Google and WebMD searches and BD had come up as a result...but who would really think that was … Continue reading Dear Behcet’s, I Loathe You So.