Hip to Be Square:Overthinking My Upcoming Hip Surgery

Somehow I've escaped any real surgeries on my body until now. At age 30+, I've never broken any bones (except toes, curse of the dancer), never needed to rush to the ER for stitches, and only been put under for dental surgeries and GI scopes. This is even more surprising considering I might be one … Continue reading Hip to Be Square:Overthinking My Upcoming Hip Surgery

Real Time Blog: Diary of a Panic Attack

Below is a real time journaling of a panic attach, which (at the time) could have mirrored a TIA episode.  The text was originally handwritten in a notebook and I've omitted any personal details, including doctor names for privacy's sake. I have used the iPhone app, Migraine Coach (full review here), to track my migraines … Continue reading Real Time Blog: Diary of a Panic Attack

25 Things to Learn on World Rare Disease Day

It's that time again. Word Rare Disease Day, a holiday of sorts for us rare disease individuals. Sponsored by GlobalGenes.org, the non-profit encourages those who have rare diseases or know someone with a rare disease to spread awareness on the last day of February by encouraging denim (jeans=genes)wear in your everyday life, and gives your … Continue reading 25 Things to Learn on World Rare Disease Day