Many Americans will check the box of multiple pre-existing conditions, and it may make obtaining health insurance under the new bill very difficult.
Still wondering what Behcet's Disease is? Well, Wikipedia is a good start...and a first choice for a lot of research choices, but as a gal with the disease, I can't help but notice that the article itself seems very stale and technical. Here's what you're missing out on by not talking to the spoonie herself.
On May 4, 2017, the House elected to push through a plan known as "Trumpcare", which would replace the ACA or "Obamacare". Here's the main things you need to know about this proposed bill.
By 2017, yoga is more than a trend. For me, it meant looking at my body in a new way...and appreciating it for how this disease has changed it. Growing up, I couldn't gain weight to save my life. I was a whopping 99 lbs. soaking wet in high school. I danced competitively all four … Continue reading How Yoga is Changing How I See My Body
We're told that diet is key to our health, and food can be medicine when it comes to fighting off the painful inflammation that autoimmune responses trigger. So where do we draw the line with what we put in our bodies?
Somehow I've escaped any real surgeries on my body until now. At age 30+, I've never broken any bones (except toes, curse of the dancer), never needed to rush to the ER for stitches, and only been put under for dental surgeries and GI scopes. This is even more surprising considering I might be one … Continue reading Hip to Be Square:Overthinking My Upcoming Hip Surgery
Sharing my disease and all it's frustrations, is not always an easy task. I remember joining several support groups online and having radio silence for months before posting. People like me. People who laugh, cry and scream about the one thing we all have in common: Behcet's. Sure, I found some I had more in … Continue reading Dear Behcet’s: 05.08.2017
I've been plagued by anxiety for as long as I can remember. As a child I succeeded in school because I was constantly pushing myself to be better. Nothing was good enough. Anything less than A made me cry. As an adult, I take on too many projects. I must be good at at them … Continue reading Letting Go: A Meditation for Sleep
Below is a real time journaling of a panic attach, which (at the time) could have mirrored a TIA episode. The text was originally handwritten in a notebook and I've omitted any personal details, including doctor names for privacy's sake. I have used the iPhone app, Migraine Coach (full review here), to track my migraines … Continue reading Real Time Blog: Diary of a Panic Attack
It's that time again. Word Rare Disease Day, a holiday of sorts for us rare disease individuals. Sponsored by GlobalGenes.org, the non-profit encourages those who have rare diseases or know someone with a rare disease to spread awareness on the last day of February by encouraging denim (jeans=genes)wear in your everyday life, and gives your … Continue reading 25 Things to Learn on World Rare Disease Day