The spoon theory is still one of the most universally recognizable metaphors for having a chronic illness.
It's that day again. Get out your alcohol wipes and thaw out your pen. It's that biweekly torture we call Humira.
You know the deal. You finally fall in love with a medication, but loathe the side effects. Many of the medications prescribed to those with chronic illnesses can wreak havoc on our bodies cosmetically. Suddenly you're back to your sweet sixteen with breakouts, or you're pulling hairy animals from your shower drain. I can't change … Continue reading 5 Remedies for Bad Hair Days: When Meds Ruin Your ‘Do
Still wondering what Behcet's Disease is? Well, Wikipedia is a good start...and a first choice for a lot of research choices, but as a gal with the disease, I can't help but notice that the article itself seems very stale and technical. Here's what you're missing out on by not talking to the spoonie herself.
By 2017, yoga is more than a trend. For me, it meant looking at my body in a new way...and appreciating it for how this disease has changed it. Growing up, I couldn't gain weight to save my life. I was a whopping 99 lbs. soaking wet in high school. I danced competitively all four … Continue reading How Yoga is Changing How I See My Body
Sharing my disease and all it's frustrations, is not always an easy task. I remember joining several support groups online and having radio silence for months before posting. People like me. People who laugh, cry and scream about the one thing we all have in common: Behcet's. Sure, I found some I had more in … Continue reading Dear Behcet’s: 05.08.2017
Dear Behshits, This is seriously one of the lowest points in my life. I have $4 in my bank, plus stray change in my car. I can't even buy food or gas. I'm living back home with my parents...something that has not happened for at least five years. And they're supporting me...which is a tremendous … Continue reading Dear Behcet’s 01.10.2017
Hey all! Below is a link to "A Year in Behcet's 2016" an article from "Clinical and Experimental Rheumatology", 2016 Vol.34, N°6 - Suppl.102. This article sums up research on Behcet's for the last calendar year and provides great information to any rheumatologist or patient. a-year-in-bechets-2016
An international group of physicians has established a set of guidelines to aid in the classification of Behcet's patients. The International Clinical Criteria for Behcet's Disease classification states patients must present with: -Recurrent oral ulcerations (aphthous or herpetiform) at least three times in one year. -Additionally, patients must present any two of the following: -Recurrent … Continue reading Clinical Criteria for Diagnosis of Behcet’s Disease
Today it happened. It wasn't the first time and it won't be the last. Today my body failed to recognize the "lady like" virtues I've had instilled in me. I am, by no means a prude. But that does not mean that I will always let my boyfriend think that the bathroom is for showers, … Continue reading The Demure Car Bomb